Showing posts with label exercise. Show all posts
Showing posts with label exercise. Show all posts

Tuesday, June 18, 2013

I'm sooooo confused

I have researched and researched MS on the internet.  I think I've read every site there is as well as more blogs than I ever thought existed.  The only consistent thing I find is that there is currently no 'available cure'.  Even as far as what kind of disease it is there seems to be arguments.  Is it an auto-immune disease or is it inflammatory?  Maybe it's related to a vascular issue....who knows?  Really it's irrelevant for me right now as even if there is a cure, it's not something I can access.  I just want to figure out the 'right' way to minimize and delay this.

This is where the real confusion begins.  I have bought and read the MS Diet by Dr. Swank.  It basically had me eliminate dairy and saturated fats.  Which was actually a shocking amount of foods.  Overall, this lifestyle change would probably be healthy for anyone.  A naturopath I saw put me on an elimination diet which basically ended up in eliminating everything but rice at which point she triumphantly announced "that's it, you're allergic to rice!).  Nice, no more money for you lady!  I'm starving!!!!!

Other people have suggested the paleo diet for those with MS.  Similar to the Swank diet, slightly less restricting...much more expensive....lot's of organic/grass fed products.  Overall, one consistency is saturated fats in high quantities...primarily vegetable oils.  Okay, done.

I get that diet is linked, the reality is however, that I just don't have the willpower to give up everything I enjoy.  I like steak sometimes, I don't like paying $25 dollars for a teeny tiny one because it's grass fed.  Once in a blue moon I feel like yogurt....not soy based (I tried it, it's gross).  To top it off my favourite food in the entire whole wide world is Chicken parmigiana.  Where do I start, bread crumbs/oil/mozzarella cheese.....delicious....not okay on any of the above mentioned plans.

Next problem.  DMDs (disease modifying drugs).  My neuro was pretty damn insistent that I start these.  He felt it was absolutely necessary at this point.  My naturopath (at the time) felt the exact opposite - then again, my only problem was a rice allergy.  Doctors apparently get a kick back for getting new patients to start these drugs from the companies that produce them so they have a great incentive to recommend them.  People say they are loaded with carcinogens and lots of stuff that will make you even sicker over time.  The drug companies say they will reduce your relapses by up to 33%.  To me it's kind of like an anti-aging cream.  You use it faithfully your whole life to help you not look so old.  You have absolutely no way of knowing what you would have looked like if you hadn't used it, so you are left to just keep forking out loads of money in good faith that they are doing something.  How many relapses would I have had if I wasn't injecting daily????? Who knows for sure.

Exercise.  People with MS should exercise regularly.  They should not exercise to the point of exhaustion, over heating or push limits as this could trigger a pseudo-exasperation or worse, trigger a true relapse.  I used to weight train.  The only thing I know is to push my limits, sweat like a dog, yell, curse and be sick from it all at the end.  That was exercise and it was awesome!!!  I did a yoga workout a few weeks ago thinking that would be okay.  I guess I shouldn't have done the intermediate/advanced because I sweat a little and sure as shit started a full out relapse a few days later.  I'm not sure if they were related or coincidence so now I'm petrified to try again.  The only thing left is stretching.  BORING.

Ughhhh.  I know I sound super negative here.  I know that I have dissected every single good idea I've come across.  It just seems though that for every good idea there is another study or person explaining why it's a load of crap.

As I said....soooooo confused.

Tuesday, June 11, 2013

Hey you!!

Hi there, yeah you, the one reading this entry.  I know that over 250 people have popped in and glanced at one or two things I've posted.  Probably 90% of you ended up here completely by accident and hit the big old back button on your browser immediately.  I do, however, think that at least a couple of people actually read through it.

So this is for those people.  I am asking you to leave a comment.  If you have anything to share at all that you think might help even the slightest, I'm all ears.  I'm still looking for recipe ideas, thoughts on copaxone, advice about exercise and even a little advice on what to do when I'm feeling really down and alone with all of this, which I am right now.

Just knowing someone, somewhere, gets it...well, that would be great to hear.

Thank for taking the time, it means more than you know,
Talk soon

Sunday, April 14, 2013

The rules...

Based on all of the research I've been doing on Multiple Sclerosis, these are the rules I've found for slowing disease progression and feeling great. 
No meat, no poultry, no dairy, no saturated fat, limited sugar, limited caffeine, no smoking, exercise at least 5 days a week, take vitamin D plus 22 other supplements and follow a strict and ever so complicated regime of homeopathy. UGHHHHH
Okay, ummmm, what's left?  I can find no dairy but it has saturated fat.  I can find no saturated fat but it has dairy.  I can find no dairy and no saturated fat but dammit, there's too much sugar.  I have created about 6 meals that actually follow these guidelines.  I am now bored of them and very, very hungry.  On the positive side, I've lost 5 pounds.
Granted, I'm new to this.  I know others have adapted to this lifestyle and are incredibly healthy.  I see pics plastered on assorted web pages of 70 year olds with multiple sclerosis doing cartwheels and running marathons.  I, however, am really missing steak. 
Now, caffeine, this was a biggie for me.  I used to drink, well, probably 6-8 coffees a day.  There is a Starbucks in my workplace.  I get up at 4am, I work 10-12 hours and commute for about 2 more on top of that.  I survived on tall lattes.  I am proud to say I now have 2 soy lattes per day and sometimes a black coffee.  I know, I know, 3 a day is still way too much but I'm trying okay?
Exercise, okay.  This one I want to do.  This one I miss.  This one I loved.  Problem is, the weights I used to lift seemed to have doubled in heaviness.  I get hot and then get sick, really sick.  I get so....damn...tired.  I am trying to do Yoga again, it's not as hot or heavy.  The only problem with this one is that I have the balance of someone with a blood alcohol volume that's WAY over the limit.  Yoga now makes me giggle at myself.  I guess that's not so bad though.
Supplements and homeopathy.  These are a blog all their own.  I am not ready to post on these yet because I don't fully understand them and have seen the hellfire rage that is thrown on-line towards those who make the mistake of posting any untrue, mis-educated or non-factual statement regarding either of these subjects.  So for now, I'll hold off on this one.
Note - I did not mention smoking....I have my reasons.
So, that's all I have to ramble about today.  I would be really happy to hear from anyone who has a great recipe idea that falls into the above mentioned rules or any other advice they may have to help me find some kind of fun in all of this.

I have to go now - I have a delicious vegie dog straight off the bbq and some soy crisps to eat...YUM!!!